First she wakes up .. TALKING... and she has to do her breathing while watching her "Shows" which is something amazing like Dora or Sesame Street. Everyone in our family knows all the names and pseudo plots to most of these exhilarating shows!
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| The hot pink vest is her "shaking vest" that helps break up the mucus in her lungs and must be done 2-4 times a day and last a minimum of 30 minutes, not to mention it is LOUD! |
Next on the docket is making sure that after she eats she has her enzymes, this is due to the fact that her pancreas doesn't produce the enzymes that absorb nutrients and it will give her a wretched tummy ache if she doesnt take them.She is very good and even reminds the adult that she needs her "zymes".Once that is done its lots of playing, mostly animals and doll house fun. She eats a ton, and her diet has to be a HIGH fat, HIGH Caloric, HIGH Salt diet because she sweats more than the avg child... the only positive thing is she eats whatever she wants and doesn't have to worry about gaining weight! If not they will make her a feeding tube... NO FUN !
Then, again before bed she does her breathing and shaking vest. The treatment at night last between 45-60 minutes because she has an extra breathing medication once a day! Mom-Mom always puts on something wildly excitng like Law and Order SVU that is captivating for a 4 year old.. cant you tell by the following picture! Ha!
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| Sleeping during her night time breathing treatment |
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